Optimisation du transfert des connaissances en soins palliatifs pédiatriques : utilisation d’une formation web

Marie-Charel Nadeau, Karine Bilodeau, Lysanne Daoust

Abstract


Les infirmières ont un rôle central à jouer dans la prestation de soins palliatifs, car elles influent sur leur qualité (Montgomery, Sawin et Hendricks-Ferguson, 2016). Elles sont des professionnelles de choix pour évaluer les symptômes de la maladie ou de la détresse psychologique, assurer une gestion efficace des symptômes ainsi qu’accompagner le patient et sa famille lors des prises de décisions sur les soins, que ce soit avec la clientèle adulte ou pédiatrique (Contro, Larson, Scofield, Sourkes et Cohen, 2004). Une pratique optimale en soins palliatifs peut prévenir ou soulager la souffrance de patients en fin de vie de tous âges, surtout si elle inclut l’évaluation des symptômes ainsi qu’une offre de soutien psychologique et social au patient ainsi qu’à sa famille (Qaseem et al., 2008). Bien que la majorité des soins palliatifs s’adresse à une clientèle adulte, il n’en reste pas moins que plus de 4 000 enfants au Canada vivent avec une maladie incurable et ont besoin de soins palliatifs de qualité (Widger, Cadell, Davies, Siden et Steele, 2012). Cependant, des études réalisées auprès d’infirmières soulignent que celles-ci éprouvent de l’anxiété quant à la prestation de soins palliatifs pédiatriques (SPP) (Mullen, Reynolds et Larson, 2015), des difficultés à communiquer avec les familles (Montgomery et al., 2017) ainsi que des difficultés à gérer leurs émotions lors des soins de fin de vie pour un enfant (Roberts et Boyle, 2005). Selon l’hypothèse première de Contro et collaborateurs (2004), ces comportements s’expliqueraient par le manque de connaissances des infirmières en ce qui a trait aux SPP.


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References


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