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Autonomisation des survivants du cancer pour répondre à leurs besoins physiques et psychosociaux : évaluation d’un projet
Abstract
Notre Programme de bien-être au-delà du cancer a été établi et évalué en tant que projet d’amélioration de la qualité. Les plans de soins individualisés pour les survivants et les fournisseurs de soins primaires incluaient des recommandations sur la surveillance du cancer et sur les besoins physiques et psychosociaux signalés par les survivants. Au rendez-vous de transition, une infirmière en oncologie a passé en revue le plan de soins et les stratégies de gestion des symptômes avec les survivants. Nous avons évalué les besoins physiques et psychosociaux, et le sentiment d’autonomie de 70 survivantes du cancer du sein et de 53 survivants du cancer colorectal à l’adhésion au programme, puis une année après la transition aux soins primaires. Les survivants ne recevaient plus de traitement actif depuis des mois, voire des années (10 ans et plus), mais les survivants du cancer colorectal ont été aiguillés plus tôt (1,2 an en moyenne). Au départ, on a observé que les survivants du cancer colorectal s’inquiétaient peu de leurs besoins (scores < 1,0 sur 5,0) et que les survivantes du cancer du sein avaient quant à elles quelques préoccupations liées aux troubles du sommeil, aux changements pondéraux, aux effets sur la mémoire/concentration et à la peur de la récidive (scores de 1,0 à 1,5 sur 5,0). Tous les survivants ont rapporté s’être sentis bien autonomisés (> 3,0 sur 4,0). Les besoins et les niveaux d’autonomisation étaient pour la plupart les mêmes après une année. On observe statistiquement que les survivants du cancer colorectal avaient davantage peur de la récidive après un an. En résumé, les survivants du cancer dotés d’un plan de soins continuent de se sentir autonomisés un an après avoir reçu leur congé.
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