Livre blanc : Faire progresser la science des symptômes du cancer à l’échelle mondiale : perspectives et stratégies ressorties de la première réunion d’infirmières expertes en science des symptômes du cancer

Sara Colomer-Lahiguera, Rachel A. Pozzar, Carolyn S. Harris, Jeannine M. Brant, Yvette P. Conley, Mary E. Cooley, Manuela Eicher, Pamela S. Hinds, Doris Howell, Sandra A. Mitchell, Karin Ribi, Margaret Quinn Rosenzweig, Susan W. Wesmiller, Christine Miaskowski, Marilyn J. Hammer

Abstract


Objet : La première réunion d’infirmières expertes en science des symptômes du cancer s’est tenue les 11 et 12 octobre 2023, à Lausanne, en Suisse. Quarante infirmières chercheuses représentant sept pays ont assisté à cette réunion qui visait à renforcer la collaboration au sein de la communauté internationale des chercheurs en science des symptômes, préciser les domaines d’intérêt commun, faire ressortir les lacunes dans les connaissances et les possibilités de recherche, et élaborer des stratégies pour surmonter les difficultés et accélérer la recherche en science des symptômes à l’échelle internationale. Le présent livre blanc sert à résumer les discussions et les recommandations formulées lors de cette réunion et à présenter la Global Research Alliance in Symptom Science (alliance GRASS).

Déroulement : Au cours de la réunion de deux jours, on a présenté des exposés sur des problèmes cruciaux et des questions qui restent sans réponses en science des symptômes du cancer et d’autres maladies chroniques. Quatre groupes de travail ont repéré des lacunes dans les connaissances et des occasions à saisir, et défini les orientations stratégiques et les mesures indispensables à prendre pour faire progresser la science des symptômes.

Résultats :Voici les recommandations formulées par les groupes de travail : GT1) utiliser les meilleures méthodes possibles pour recueillir, analyser et utiliser des données sur les symptômes destinées à servir en clinique et en recherche; GT2) créer un ensemble minimum de données, ou un modèle de données commun, pour la recherche en science des symptômes; GT3) raffiner les pratiques exemplaires de mise en œuvre de stratégies scientifiques de manière à améliorer la gestion des symptômes fondée sur les données probantes dans les soins de routine; et GT4) renforcer les capacités et l’infrastructure pour créer une alliance internationale en science des symptômes du cancer (Alliance GRASS).

Conclusions :La communauté internationale se mobilise pour faire progresser la science des symptômes. Le mini-symposium a permis de jeter les bases de la création de l’alliance GRASS, qui se consacre à la science des symptômes du cancer et d’autres maladies chroniques. Organiser des réunions scientifiques à intervalles réguliers, promouvoir la collaboration interdisciplinaire et mobiliser des chercheurs de la science des symptômes, voilà les orientations que l’alliance s’est choisies pour l’avenir.

Mots-clés : cancer; maladie chronique; états comorbides; santé globale; science des symptômes

10.5737/23688076355767


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References


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