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Vivre avec un cancer et d’autres maladies chroniques : perceptions des patients au sujet de leur expérience des soins de santé
Abstract
On sait que la multimorbidité contribue à la complexité des soins prodigués aux patients atteints de cancer. La présente étude qualitative explore le vécu des patients qui reçoivent des traitements multimodaux (traitements pour de multiples maladies chroniques), ainsi que les difficultés pour ces patients à naviguer dans le système de soins de santé. Les participants (n = 10) ont été recrutés dans un centre ambulatoire de cancérologie d’un grand hôpital affilié à une université, à Montréal (province de Québec). Ils ont rapporté qu’il était particulièrement difficile d’atteindre un juste équilibre entre les besoins de santé aigus et la présence de maladies chroniques persistantes, de vivre des complications imprévues liées au traitement, et d’arriver à pallier le manque de liaison entre les spécialités médicales. Les participants auraient également souhaité que l’équipe soignante les connaisse mieux. Lorsqu’ils signalaient une expérience de coordination des soins positive, les participants l’associaient souvent à l’intervention d’une infirmière pivot. Finalement, les participants auraient aimé que l’approche de soins soit plus personnalisée et qu’ils puissent se joindre aux réunions du comité multidisciplinaire. Les résultats de l’étude soulignent le désir d’améliorer l’intégration des soins entre les maladies, les soins axés sur la personne et le soutien des patients qui cherchent à équilibrer des besoins concurrents en contexte de multimorbidité.
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