2011 Helene Hudson Lectureship: Lived experiences of nurses as family caregivers in advanced cancer

Lisa Cicchelli, Deborah McLeod

Abstract


Research regarding experiences of nurses caring for family members with a cancer diagnosis is limited. To address this gap, a hermeneutic phenomenology approach was used to explore lived experiences of five nurses caring for family members living with advanced cancer. Their experiences were fraught with tensions and conflicts as they balanced the roles of nurse and caregiver. At the heart of their experiences was a sense of being caught in a web of conflicting expectations. Their struggles of expectations stemmed from anticipating the illness trajectory, expectations from family, expectations from other health professionals, and expectations from the nurse caregivers of themselves. Conflict between their professional and personal lives was most challenging. Implications of this care-giving situation are described.


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References


Andrews, J., Manthorpe, J., & Watson, R. (2005). Employment

transitions for older nurses: A qualitative study. Journal

of Advanced Nursing, 51(3), 298–306. doi:10.1111/

j.1365-2648.2005.03501.x

Björk, M., Wiebe, T., & Hallström, I. (2005). Striving to survive:

Families lived experiences when a child id diagnosed with cancer.

Journal of Pediatric Oncology Nursing, 22(5), 265–275. doi:10.117

/1043454205279303

Caron, D., & Bowers, B.J. (2003). Deciding whether to continue, share

or relinquish caregiving: Caregiving views. Qualitative Health

Research, 13(9), 1252–1271. doi:10.1177/1049732303257236

College of Registered Nurses of Nova Scotia (CRNNS). (2006).

Retirement and Retention of Late Career Nurses in Nova Scotia.

Halifax, Canada. Author.

Dumont, S., Turgeon, J., Allard, P., Gagnon, P., Charbonneau, C., &

Vezina, l. (2006). Caring for a loved one with advanced cancer:

Determinants of psychological distress in family caregivers. Journal

of Palliative Medicine, 9(4), 912–921. doi:10.1089/jpm.2006.9.912

Eldredge, D.H., Nail, L., Maziarz, R.T. Hansen, L.K., Ewing, D., &

Archbold, P.G. (2006). Explaining family caregiving role strain

following autologous blood and marrow transplantation. Journal of

Psychological Oncology, 24(3), 53–74. doi:10.1300/J077v24n03_03

Grande, G., Stajduhar, K., Aoun, S., Toye, C., Funk, L., Addington-Hall,

J., Payne, S., & Todd, C. (2009). Supporting lay carers in end of

life care: Current gaps and future priorities. Palliative Medicine,

, 339–344. doi:10.1177/0269216309104875

Kim, Y., Baker, F., Spillers, R.L., & Wellisch, D.K. (2006). Psychological

adjustment of cancer caregivers with multiple roles. Psychooncology,

, 795–806. doi:10.1002/pon.1013

Koerner, S.S., & Kenyon, D.B. (2007). Understanding “good days” and

“bad days”: Emotional and physical reactivity among caregivers

for elder relatives. Family Relations, 56(1), 1–11. doi:10.1111/

j.1741-3729.2007.00435.x

Lefaiver, C.A., Keough, V., Letizia, M., & Lanuza, D.M. (2009). Quality

of life in caregivers providing care for lung transplant candidates.

Progress in Transplantation, 19(2), 142–52.

Lockwood, N.R. (2003). The reality of the impact of older workers

and eldercare in the workplace. HR Magazine, 48(12), 1–11.

Mills, J., & Aubeeluck, A. (2006). Nurses’ experiences of caring for

their own family members. British Journal of Nursing, 15(3), 160–

Nevidjon, B. (2004). Managing from the middle: Integrating midlife

challenges of children, elder parents, and career. Clinical

Journal of Oncology Nursing, 8(1), 72–75. doi:10.1188/04.

CJON.72-75

O’Brien-Pallas, L., Alksnis, C., & Wang, S. (2003). Bringing the Future

into focus: Projecting RN Retirement in Canada. Ottawa: Canadian

Institute for Health Information.

Osse, B.H., Vernooij-Dassen, M.J., Schade, E.., & Grol, R.P. (2006).

Problems experienced by informal caregivers of cancer

patients and their needs for support. Cancer Nursing, 29(5),

–388.

Perreault, A., Fothergill-Bourbonnais, F., & Fiset, V. (2004). The

experience of family members caring for a dying loved one.

International Journal of Palliative Nursing, 10(3), 133–143.

Schumacher, K.L., Beidler, S.M., Beeber, A.S., & Gambino, P. (2006). A

transactional model of cancer family caregiving skill. Advances

in Nursing Science, 29(3), 271–286.

Scott, L.D., Hwang, W.T., & Rogers, A.E. (2006). The impact of multiple

caregiving roles on fatigue, stress, and work performance among

hospital staff nurses. Journal of Nursing Administration, 36(2),

–95.

van Manen, M. (1997). Researching Lived Experience. London:

University of Western Ontario.

Villeneuve, M., & MacDonald, J. (2006). Towards 2020: Visions of

Nursing. Ottawa: Canadian Nurses Association.

Ward-Griffin, C. (2004). Nurses as caregivers of elderly relatives:

Negotiating personal and professional boundaries. Canadian

Journal of Nursing Research, 36(1), 92–114.

Williams, L.A. (2007). Whatever it takes: Informal caregiving

dynamics in blood and marrow transplantation. Oncology

Nursing Forum.,34(2), 379–387. doi:10.1188/07.ONF.379-387


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